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(19) Self help links

Chilhood illnesses Charities

ADHD forum - This is a support forum for non-ADD partners, spouses, and significant others offering feedback from both the ADD and non-ADD perspectives

Autism Independent UK (SFTAH) - The Autism Society exists to increase awareness of autism, together with well established and newly developed approaches in the diagnosis.

The National Autistic Society - We champion the rights and interests of all people with autism and aim to provide individuals with autism and their families with help, support and services that they can access, trust and rely upon and which can make a positive difference to their lives. UK Site

Cri du chat support group - The Group actively promotes research into the syndrome in the hope that the understanding it brings, will help us and future families to come to deal with the daily complexities of the syndrome. 

Rett Syndrome Association UK - We are a national organisation giving help, advice and support to parents, carers, siblings and professionals, in fact anybody involved with a child or adult who has Rett syndrome.

Adhd living - Information & support for people with ADHD in their lives

Bereavement Charities

FSID Foundation for the study of infant death - The Foundation for the Study of Infant Deaths (FSID) is the UK's leading baby charity working to prevent sudden deaths and promote health. FSID funds research, supports bereaved families and promotes safe baby care advice

SANDS (Stillbirth & Neonatal Death Society). SANDS supports parents whose baby has died, and works with health and social care professionals to improve the quality of services provided to bereaved families. SANDS also promotes research into the causes of stillbirths and neonatal deaths and changes in practice that could save more babies’ lives. Helpline : 020 7436 5881 Fax : 020 7436 3715 Email : support@uk-sands.org

Baby Loss The Babyloss website provides online information and support for anyone affected by the death of a baby during pregnancy, at birth, or shortly afterwards.

Child Death Helpline. Provides a listening service that offers emotional support to all those affected by the death of a child and an opportunity for you to talk in confidence with someone who has also experienced the death of a child. FREEPHONE 0800 282 986

Fostering Organisations

Fostering - Fostering Solutions is an independent foster care agency who are passionate about ensuring positive outcomes for children and young people in the fostering process

Problems during pregnancy

Tommy's the baby charity - Tommy's exists to save babies' lives through funding research into and providing information on the causes and prevention of miscarriage, premature birth and stillbirth.

Misscarriage association - The Miscarriage Association is a registered national charity (no. 1076829) and a company limited by guarantee (no. 3779123) , working across England, Northern Ireland, Scotland and Wales. It was founded in 1982 by a group of people who had experienced miscarriage and we continue to offer support and information to anyone affected by the loss of a baby in pregnancy, to raise awareness and to promote good practice in medical care.

ARC (Antenatal Results and Choices) - More than 35,000 women in the UK every year will be told, as a result of antenatal screening, that there is a risk that their unborn baby may have a serious abnormality. ARC (Antenatal Results and Choices) supports parents who may be faced with difficult decisions during the pregnancy, and also provides a national helpline and a befriending service.
Telephone 020 7631 0280

Eptopic pregnancy - The Ectopic Pregnancy Trust was established in 1998 to raise awareness of ectopic pregnancies amongst women of childbearing age, the medical profession and the general public.

Group B strep - Group B Strep Support (GBSS) is a UK charity, founded in 1996. Our three main aims are to Offer information and support to families affected by group B Streptococcus, Inform health professionals and individuals how most group B Strep infections in newborn babies can be prevented; and Generate continued support for research into preventing group B Strep infections in newborn babies.

Interine growth restriction - The MAGIC Foundation is a national non-profit organization created to provide support services for the families of children afflicted  with a wide variety of chronic and/or critical disorders, syndromes and diseases that affect a child’s growth.

APEC - Action on Pre-eclampsia is a UK based charity set up in 1991. They help and support women who have had pre-eclampsia (preeclampsia), eclampsia, HELLP Syndrome or pregnancy induced hypertension (PIH).

Post Natal Depression

Post Natal Depression - A blog devoted to woman who have suffered postnatal depression or feel they may be suffering it or just want to know more, we want to build up a useful resource to help woman combat this illness

Infertility

Fertility Expert  - focused on understanding fertility and infertility treatments, tests and support.

Fertility Diaries - An online diary and community for trying to concieve, pregnancy and birth. You can meet others, upload pics to profile, vidit the forum and more

Breastfeeding Advice

Association of Breast Feeding Mothers (ABM)   A charity run by mothers for mothers committed to giving friendly support and supplying accurate information to all women wishing to breast feed. Telephone counselling: 0870 401 7711


 

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